ESTONIAN GENOME PROJECT
• ESTONIAN GENOME PROJECT
• GOAL AND OBJECTIVES
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GOAL OF THE PROJECT
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OBJECTIVES OF THE PROJECT
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COMPETITIVE ADVANTAGES OF THE PROJECT
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RELATIONSHIP WITH THE PUBLIC
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• LEGAL AND ETHICAL FRAMEWORK
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LEGAL REGULATIONS
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ETHICAL ISSUES
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INSTITUTIONAL ARCHITECTURE
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• ESTABLISHMENT OF THE GENE BANK
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INFORMED CONSENT
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PHENOTYPING - HEALTH DATA MAPPING
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QUESTIONNAIRE OF HEALTH AND GENEALOGICAL DATA
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TISSUE SAMPLES
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CODING CENTRE, LABORATORY AND STORAGE FACILITY
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GENOTYPING - GENETIC DATA MAPPING
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MONITORING AND QUALITY SYSTEM
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GENERAL STRUCTURE OF THE INFORMATION SYSTEM
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DATA PROTECTION REQUIREMENTS
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CODING AND DECODING
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• RANGE OF USE AND APPLICATION
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• FINANCING OF THE PROJECT
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PUBLIC-PRIVATE PARTNERSHIP
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PILOT PROJECT
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