COUNSELING TECHNIQUES:
ASPECTS OF GENETIC TESTING
NEEDED TO CONSIDER
By
Sharon Fleiner Smith Kindron
Student ID Number: 12978
Submitted in partial fulfillment of the requirements
for the degree of Doctor of Philosophy,
Individual Program –
Ashkenazi Jewish Genetic Disorder Studies
at Century University.
To
Dr. William Mayhill,
Faculty Advisor
CENTURY UNIVERSITY
August 1, 2008
Approved____________________________________
Date Approved________________________________
1
© Copyright 2008
Sharon Fleiner Smith Kindron
ALL RIGHTS RESERVED
TABLE OF CONTENTS
Introduction
Prenatal Testing
Decision Making About Prenatal Testing
Psychological Effects of Prenatal Testing
Decision Making About Prenatal Testing
Psychological Effects of Prenatal Testing
Interventions in Prenatal Testing
Carrier Testing
Decision Making About Carrier Testing
Psychological Effects of Carrier Testing
Interventions in Carrier Testing
Critique of Carrier Testing Studies
Predictive Testing
Decision Making About Predictive Testing
Cancer Susceptibility Testing
Perceived Risk
Other Predictive Tests
Psychological Effects of Predictive Testing
Cancer Susceptibility
Behavioral Outcomes of Predictive Testing
Interventions in Predictive Testing
3
Critique of Predictive Testing Research Initial Studies
Decision Making About Genetic Testing
Psychological and Behavioral Outcomes of Genetic Testing
Scope of Counseling Covered
Organization of the Study
Recommendations
Confidentiality
Genetic Counseling Capabilities
The Emergence of Professional Counselors
The Counselor’s Role
Knowledge
Disclosure of Incidental Findings
Findings of Non-paternity
Public and Professional Education
Professional Education
Education for Particular Screening Programs
Well-Being
The Special Case of Artificial Insemination by Donor
Ensuring Accuracy and Safety of All Programs
Pilot Programs
Monitoring Long-Term Outcome
Professional and Quality Standards
Equity
Distributing Risks
Uses