Joining Together for
As our Chapter’s 1st decade of service to people with ALS and their families
comes to a close, our leadership role in the fight against ALS is evident. As
always, our promise to the people we serve remains to provide the highest
quality of care and support services, while contributing to ALSA’s comprehen-
sive research program and advocating for ALS related heath care concerns at
the state and national level.
In the past year, the Chapter has grown at a rapid pace.The expanded roster of
supporters appearing in this issue is a testament to the confidence in our efforts.
Thanks to gifts such as yours, $2.8 million was received in 2004, a 27% increase in just one year.This increase
provides the resources needed to increase our research funding and expand our patient programs.
Our Chapter plays a leading role in raising awareness of ALS through ALSA’s National Walk to D’Feet ALS
events.As host to the nation’s largest Walk in 2004, the Long Island Walk, drew over 3,200 people and raised
in excess of $700,000. Over 180 families participated, more than doubling the 80 families walking last year,
and sending a powerful message of hope in the fight against ALS!
This year, the Greater New York Chapter was honored with ALSA’s 2004 Excellence in Advocacy Award. In
May of 2005 we joined a delegation of over 700 PALS, friends and family members from 43 states across the
country to educate Members of Congress about ALS and our Legislative priorities (see page 4).
Our efforts are enhanced with partnership of individuals who are dedicated to eradicating ALS by raising the
profile of our cause.This year we welcome Bob Costas, Lynn Cone, Judy and Rod Gilbert and Sally John to
our Chapter’s Honorary Board.
We are saddened by the loss of Board member James Rather and Honorary Board member Teresa Wright.
Jim and Teresa made a difference for our cause by advancing ALS awareness and will be missed by all of us
at the Chapter.
As we begin our second decade of serv